Piel Mariposa: A Rare and Devastating Skin Condition

What is Piel Mariposa?

Piel Mariposa is a rare and debilitating skin condition that causes the skin to become extremely fragile and easily damaged. It is also known as epidermolysis bullosa (EB) and is caused by a genetic mutation that affects the production of collagen, a protein that gives skin its strength and elasticity.

Symptoms of Piel Mariposa

The symptoms of Piel Mariposa can vary depending on the severity of the condition. Some of the most common symptoms include:

• Blisters and sores that form on the skin
• Skin that is easily torn or damaged
• Painful wounds that can become infected
• Scarring
• Deformities of the hands and feet
• Dental problems
• Eye problems
• Feeding difficulties
• Growth problems

Causes of Piel Mariposa

Piel Mariposa is caused by a genetic mutation that affects the production of collagen. Collagen is a protein that gives skin its strength and elasticity. The mutation that causes Piel Mariposa prevents the body from producing enough collagen, which results in skin that is extremely fragile and easily damaged.

Treatment for Piel Mariposa

There is no cure for Piel Mariposa, but there are treatments that can help to manage the symptoms and improve the quality of life for people with the condition. Treatment options may include:

• Wound care to prevent and treat infections
• Pain management
• Surgery to correct deformities
• Nutritional support
• Genetic counseling

Outlook for People with Piel Mariposa

The outlook for people with Piel Mariposa depends on the severity of the condition. Some people with mild forms of the condition may be able to live relatively normal lives. However, people with severe forms of the condition may have a shortened life expectancy.